Colin Farrell’s fundraiser with longtime friend for skin condition EB raises over 500,000 [Video]

ACTOR COLIN FARRELL and his longtime friend, Emma Fogarty, who is Ireland’s longest-surviving person battling epidermolysis bullosa (EB), have thanked viewers of Friday night’s Late Late Show that saw €415,000 fundraised on the night for charity Debra.

The fundraiser has now raised over €570,000 for the national EB charity, helping the 300 people living in Ireland with the condition. 

Farrell joined Fogarty on the show to raise awareness of their ‘Run to 40’ challenge.

Fogarty this year celebrated her ‘miracle’ 40th birthday, despite having the most severe type of the genetic skin condition.

Born with no skin on her left foot and right arm, EB causes excruciating blisters on her skin at the mildest touch – the reason it is also known as ‘Butterfly Skin’.

Emma lives with recessive dystrophic EB, the most severe form of the rare genetic disease, with a current life expectancy of 30-35 years.

Funds raised during the Run to 40 drive will be used to fuel …